Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.

Earlier this month, I took a trip to England with my dad and my friend Anna — my first overseas adventure. I’m posting my photos on my Instagram account (you have to follow me to see them) and will be ...

Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...

The use of salbutamol may improve upper limb strength and aid breathing in young children with spinal muscular atrophy, an analysis found.

Meeting your new medical team is never easy, especially when you have a complex and rare disease like SMA, columnist Alyssa ...