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Objects 2020
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MCAS Symptoms: Why Your Gut and Heart Can Flare Together
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8 months ago
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One of the more characteristic complaints I hear during an MCAS flare is “internal vibrating.” Patients often describe feeling completely still on the outside, while on the inside it feels like their entire body is buzzing, humming, trembling, or vibrating. I hear this surprisingly often in patients with active mast cell symptoms. It’s not specific enough to diagnose MCAS by itself—and internal tremor can occur in other neurologic or autonomic conditions—but when it appears alongside a patient’s
602 views
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dr.zac.spiritos
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When someone is in an MCAS flare, one of the first questions I ask is: what changed? Sometimes the answer is surprisingly small. You refill a medication you’ve taken for months, but the manufacturer changed—and suddenly the fillers, dyes, or inactive ingredients are slightly different. A medication you previously tolerated may now be contributing to symptoms. But this speaks to a bigger point: MCAS flares can give us clues in terms of what to avoid, but also, where to go with potential treatment
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🤯This is what a mast cell activation syndrome (MCAS) flare looks like for me. I’ve been in one for the past two days, and honestly… it came out of nowhere. It could be because I exercised at Pilates. It could be delayed fallout from my immunoglobulin infusion a couple of weeks ago that already triggered a flare and then calmed down for a few days. Or it could just be my body doing what MCAS bodies sometimes do — flaring without a clear reason. And it is miserable.😩 🌟When my mast cells flare,
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